|What: 5K Run/Walk to help cure Whispering Pines boy with rare genetic disorder|
When: Saturday, April 18th, 8:00 am
Where: The Carolina Community off of Airport Road – 277 Ave. of the Carolinas
How: National MPS Society online event link.
Organized by the National MPS Society, the April 18th event will be held in The Carolina community off of Airport Road.
The morning starts with a Kids Fun Run at 8 a.m., followed by the 5K Run at 8:15 a.m., and a one-mile walk at 8:30 a.m. A 9:30 a.m.
Awards Ceremony will follow, along with a 10 a.m. post-event lunch and celebration at the Carolina Clubhouse, 277 Ave. of the Carolinas. Packet pickup begins at 7 a.m.
Event registration, and MPS IV research funding donations, can be made through the National MPS Society online event link. 100% of monies go directly to fund research.
Help find a Cure for Keller!
In February of 2019, a wonderful little Whispering Pines boy named Keller Blakeley was diagnosed with a rare genetic disease – Morquio A Syndrome.
Otherwise known as MPS IV, or Mucopolysaccharidoses, the genetic lysosomal storage disease affects the body’s ability to produce specific enzymes – and as a result affects the body’s skeletal development and systems.
Because of the disease’s rarity, alongside the National MPS Society in Durham, Keller and his family are hosting a local 5K on April 18th to raise critical research-funding needed to develop MPS IV treatment options and possibly even a cure for all MPS IV patients.
An estimated one in 300,000 U.S. births are affected by MPS IV, and because of the genetic disease’s rarity, research funding is extremely limited. But, you can help find treatments and a cure through the “1st Annual Keller’s 5K for MPS” event.
Learn more about MPS, the Durham-based National MPS Society, and the organization’s nationwide Running For Cures 5K Run/Walk events by visiting www.mpssociety.org.